Brain Tumour Research

Last week, the UK Government published a powerful report by Lord Darzi, revealing that the NHS is in critical need of reform. Among the many findings, the report highlighted the worrying state of cancer care, including: • Only 65.8% of cancer patients are being treated on time in the UK • Just 60% of genomic tests (vital for cancer diagnoses) are delivered on schedule • Only 5% of eligible brain cancer patients have access to whole genome sequencing, which is vital for treatment selection During Childhood Cancer Awareness Month, we welcome the emphasis that the report placed on improving care services for children. On average, over 420 children in the UK are diagnosed with a brain tumour every year, accounting for more than a quarter of all childhood cancers in Great Britain. Read more ➡️ https://bit.ly/4gvSGrh #NHS #BrainTumourResearch #ChildhoodCancerAwareness #Healthcare #UKGovernment

We are extremely grateful to The Hospital Saturday Fund for their ongoing support and contribution to help fund the fight against brain tumours. Their latest grant of £2,000 has been used to cover the cost of two weeks of next-generation sequencing (NGS) at one our Centres of Excellence. NGS is cutting-edge technology that allows researchers to determine the sequence of DNA and RNA. Our centre at Queen Mary University of London used NGS to identify differences between healthy neural stem cells and cancerous glioma stem cells from the same patient, thus providing information about the drivers of cancer and that are likely to play a role in glioblastoma growth and potentially revealing targetable vulnerabilities.

Our policy team recently met with Jenni Minto, Minister for Public Health and Women's Health, at Holyrood alongside the Scottish Government’s Cancer Policy team and Professor Steve Pollard from The University of Edinburgh. The packed agenda ranged from why brain tumours must be treated as a priority by Scottish Government, to how they should explore an academic partnership model to ensure long-term, sustainable funding for brain tumour research. Ms Minto will open the inaugural meeting of the Cross Party Group on Brain Tumours on 8th October. Read more ➡️ https://bit.ly/4e0AKUf #BrainTumourResearch #ScottishGovernment

Yesterday in Portcullis House, the inaugural meeting of the All-Party Parliamentary Group on Brain Tumours (APPGBT) for this Parliament was held and the group can now be registered. Supported by MPs Sarah Owen, Mims Davies, and Lord Polak, along with over 20 Parliamentarians, this dedicated team is committed to improving options and outcomes for brain tumour patients. Dame Siobhain, whose sister Margaret passed from glioblastoma last year, expressed her determination to drive change and push for better, kinder treatments. Read more ➡️ https://bit.ly/3ToRnk0 #BrainTumourResearch #APPGBT #CancerAwareness

“We just want to make it as easy and frictionless and enjoyable for them to raise money as possible.” 🙌 With thinking like that, it's no wonder Brain Tumour Research smashed it out the park when it came to their 10,000 Steps a Day in February Challenge. By using GivePanel's JustGiving integration, the team have not only grown their fundraising but also made it easier for supporters to choose how they want to fundraise. And spoiler, they raised a lot! 🎉 Read the full success story and get in touch to find out how your nonprofit can make the most of our JustGiving integration ✅ https://buff.ly/4gf953l

The first treatment for a rare condition which causes brain tumours has been announced. The drug belzutifan is now available on the NHS as treatment for Von Hippel-Lindau (VHL) disease, a rare condition which causes cysts and tumours in different parts of the body, including the brain. The NICE - National Institute for Health and Care Excellence has recommended belzutifan for some adults with VHL disease who need treatment for VHL-associated central nervous system, kidney or pancreatic tumours. This breakthrough could transform lives by reducing the need for repeated surgeries and protecting vital organ function. Read more about this ground-breaking development ➡️ https://bit.ly/4eglAtH #BrainTumourResearch #NHS #CancerAwareness

Today is International Day of Charity ✨ Every act of kindness, no matter how small, makes a huge difference in our fight against all types of brain tumours. Your support helps us fund ground-breaking research, offer hope to families, and move closer to finding a cure. There are many different ways to get involved, from wearing a hat for hope, to leaving us a gift in your will Help us take another step towards a cure ➡️ https://bit.ly/3Z5vdHk #InternationalDayOfCharity #BrainTumourResearch #Donate #Charity

One in three children who die of cancer are killed by a brain tumour. This September, for Childhood Cancer Awareness Month, we’re standing with families impacted by this devastating disease to raise awareness and push for a cure 🧒 We’re leading the way to increase the national investment in research to find new treatments and ultimately a cure. Donate now to support vital research and find kinder treatments and cures for children ➡️ https://bit.ly/3z4h2rh #ChildhoodCancerAwarenessMonth #BrainTumourResearch #Donate #FindACure

Hundreds of our wonderful supporters are gearing up to put their best foot forward for our Walk of Hope on Saturday 28th September 👣 Can’t make it to one of our six locations? No problem! You can create your own walk, it's as simple as rounding up your family and friends and heading out for a stroll in your local park. Or turn it into a trip down memory lane by revisiting a route you used to take with a loved one 💛 Step forward on your own Walk of Hope ➡️ https://lnkd.in/dYsksExd #WalkOfHope #TogetherWeCan #BrainTumourResearch #HopeInMotion #FundraisingForACure #MakeADifference

Our incredible Brain Tumour Research supporter Nick Hampshire is now on day five, of his epic seven-day challenge running from Liverpool to London! He is running the equivalent of NINE marathons! This is no easy feat for Nick, as not only is it physically challenging, but also mentally and emotionally as he's doing this to help Brain Tumour Research get closer to finding a cure for the devastating and cruel disease that took his father far too young 💛 A comment of encouragement would be very welcomed and if you fancy donating your coffee money that would be very much appreciated too: https://bit.ly/4fRKFfX #UltraMarathons #Running #Charity #braintumourresearch